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This month sees me smash yet another milestone on my MND journey. 

At the time of diagnosis I was delivered the shattering news of how severely life-shortening this disease can be. The neurologist’s prognosis was two to five years from the start of symptoms!!… and there I was, already 18 months on since my first fall!! But now 5 years after that devastating day on 11 September 2017, I’M STILL HERE!! Not just surviving, but thriving in so many ways.

So much has happened on this journey, from the highest of highs to the lowest of lows.  I realise how much this disease has affected everyone around me, but wherever possible I focus on being awesome and having a positive attitude in everything I do. No matter what, I wake each day and feel driven to continue kicking goals and crush the MND stereotype. I am very fortunate to have had some fantastic wins along the way, and even feel joy in the smallest accomplishments. I have worked so hard to stay alive and am so grateful for every single day that I’m here. 

Twelve months ago I experienced my darkest hour. Locked down in Melbourne for 6 weeks due to the pandemic, unable to return home to Brisbane, my weight plummeted to 44kg. I was a shadow of myself, physically and mentally, just skin and bones. But never one to shy away from a challenge, I set my mind to salvaging my strength and wellbeing. I have managed to regain 10 kg, and now sit at 54kg – literally unheard of in MND/ALS patients. I think it was sheer determination and a mindset to keep going no matter what, that has got me through this time… plus the many friends and family who would kill me if I wasn’t here!

I am still shocked by my before and after photos. But, it is a wonderful reminder about the obstacles I’ve faced, and conquered! Today, and every day, I celebrate and am very thankful for everyone in my life. Remember, keep being awesome every day xx

Before (Sep 2021) and After (Sep 2022) 10kg

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